Harlequin ichthyosis

I spend a lot of time complaining about the many skin conditions I have, Exzma, Dermititous, Psoriasis and Folliciuitous. More than a lot of time, a stupid amount of time. I complain when It flares up, I complain about the medication, I complain that it isn't attractive. In fact, tomorrow I have to go to the doctors because the skin around my eyes has come extreamly painful and imflamed.

But today I re-descovered Harlequin ichthyosis (I'm not sure if that's spelt right). I had heard about it before, well, more like seen someone on the Jeremy Kyle show once who had it, and words cannot describe how guilty I felt when it hit me how hard it must be to live with this condition.

Harlequin ickthyosis is a sever skin condition. It is when the skin of a baby becomes really thick and dry. Where "normal" skin folds (as in the crook of your elbow, knees ect.) Harlequin skin cracks, think about how extreamly dry land cracks, in fact, it cracks pretty much all over, making movement very very hard. The eyes, ears and nose of the baby is very underdeveloped and in some cases not even visible. The eyes are pretty much completely red, and their dry lips are pulled back into a somewhat scary grimace. I'm not going to lie, when I saw a photo of a harlequin baby I was so shocked, I honestly thought that it was some sort of joke that someone had played on photoshop, but now I realise that it is no laughing matter.

I'm not going to pretend to be an expert on this, considering I've only just looked into it, but I know how much I scream and cry in pain when my exzma cracks, I can't begin to imagion how much pain these people must go through daily, and not once have I heard of these people complaining about how much pain they're in.

so henceforth, I am making it my New new years resolution not stop complaining about my skin and make an effort to me more considerate towards others.